STUDIO CITY, Calif., April 7, 2022 /PRNewswire/ — As this year’s Myeloma Action Month came to a close, the International Myeloma Foundation (IMF) was unwavering in achieving its goals. By encouraging individuals and groups to take action for myeloma through a powerful social media campaign, the IMF succeeded in increasing awareness of the disease, and in inspiring a culture of hope and resilience among the members of the myeloma community.
The IMF is proud to report that the myeloma community went above and beyond when it came to taking action and making a difference for myeloma. Despite the pandemic and an ongoing conflict in Ukraine, the global community came together to participate in the Myeloma Action Month movement— with over 30 million people in 46 countries reached across the globe.
IMF President & Chief Executive Officer and 26-year myeloma survivor Yelak Biru is truly elated at the success of this year’s Myeloma Action Month: “Throughout this year’s Myeloma Action Month, the IMF focused on encouraging engagement through the theme, #MYelomaACTION. Each of us has a role in advancing the art and science of cancer care in general, for better outcomes for myeloma in particular.”
In 2009, the IMF launched March as Myeloma Awareness Month to shed light on this little-known cancer. By 2016, the organization elevated the campaign to Myeloma Action Month, with the added purpose of encouraging individuals and groups to take actions that positively impact the myeloma community.
This year, Myeloma Action Month was all about TAKING ACTION TO MAKE A DIFFERENCE. Participants in this year’s campaign were able to join the movement by uploading photos of their chosen action at the Myeloma Action Month website, using the hashtag #MYelomaACTION, and sharing their photos of “action” on Twitter, Instagram, Facebook, and LinkedIn. To further increase awareness about the disease, the Myeloma Action Month website also featured 31 IMF Facts and Stats about myeloma.
Forty-six countries joined the #MYelomaACTION movement this year, with Myeloma Action Month social badges and infographics translated into more than 12 international languages. Individuals and groups shared their actions, posts, and photos across the globe.
Some of the highlights of this year’s Myeloma Action Month include:
- For 31 days, the Myeloma Action Month advent calendar was filled with inspiring posts of actions taken by members of the myeloma community to draw attention to the disease while encouraging others to share their own actions.
- Myeloma Action Month was declared in Hamilton County, TN and in Walker County, GA
- The IMF Support Group Team virtually presented and provided tech support to 80 support groups during the month of March, with updates and resources from the IMF.
- IMF Regional Director of Support Groups, Kelley Sidorowicz, created guided audio meditations and yoga videos for those living with myeloma. These interactive programs are available for free at the Mind and Body Experience website.
- Sponsor participation exceeded expectations with their active engagement in social media.
- In China, a series of myeloma lectures were produced and were available for viewing in real time and as replay videos.
- In Hong Kong, a program introducing myeloma to the public was produced and aired locally.
- In South Korea, a series of events were carried out throughout Myeloma Action Month. The Korean Blood Disease & Cancer Association (KBDCA) produced a video where patients asked Dr. Ki-hyun Kim of the Korean Multiple Myeloma Working Party (KMMWP) various questions related to multiple myeloma treatments. The KBDCA also produced a collection of online videos, which featured myeloma patients in various themes. The videos are available on YouTube via the KBDCA channel.
- In Italy, Associazione Italiana contro le Leucemie, linfomi e mieloma Onlus (AIL) — an organization which works to raise public awareness of the fight against blood diseases — held a patient webinar on March 28.
Thanks to the kind and generous contributions of individuals and groups, the IMF is delighted to announce that 2022 Myeloma Action Month made an enormous difference in building a powerful mosaic of activity for every myeloma patient, caregiver, nurse, doctor, and advocate — thus, fortifying the myeloma community’s collective hope, understanding, and resilience.
The IMF is grateful to the following Platinum Sponsors for supporting Myeloma Action Month: 2seventy bio, Amgen, Binding Site, Bristol Myers Squibb, GSK, Janssen Pharmaceutical Companies of Johnson & Johnson, Karyopharm Therapeutics, Pfizer, Regeneron, Sanofi, and Takeda Oncology.
ABOUT MULTIPLE MYELOMA
Multiple myeloma is a cancer of the bone marrow plasma cells — white blood cells that make antibodies. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called “multiple” because there are frequently multiple patches or areas in bone where it grows. It can appear as both a tumor and/or an area of bone loss, and it affects the places where bone marrow is active in an adult: the hollow area within the bones of the spine, skull, pelvis, rib cage, and the areas around the shoulders and hips.
ABOUT THE INTERNATIONAL MYELOMA FOUNDATION
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest global foundation focusing specifically on multiple myeloma. The Foundation’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure by focusing on four key areas: research, education, support, and advocacy. The IMF has conducted more than 250 educational seminars worldwide, maintains a world-renowned InfoLine, and in 2001, established the International Myeloma Working Group (IMWG), a collaborative research initiative focused on improving myeloma treatment options for patients. In 2012, the IMF launched the Black Swan Research Initiative®, a groundbreaking research project aimed at curing myeloma. The IMF can be reached at (800) 452-CURE (2873). The global website is www.myeloma.org.
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SOURCE International Myeloma Foundation